Welcome!

The PBC Research Foundation is dedicated to accelerating the path to clinical treatments for rare liver diseases by harnessing the power of patient-centered and patient owned data. Our initial focus is on Primary Biliary Cholangitis (PBC), working hand-in-hand with patients to collect and analyze real-world, regulatory and compliant, data that is non-biased.

 

Through strong patient advocacy and collaboration with researchers, clinicians, regulatory boards and PBC stakeholders, we strive to bridge the gap between data collection and clinical breakthroughs and advancing the fields of research and treatment. Beginning in year two, we will expand our scope to other liver disorders, identifying common genetic factors and biomarkers to unlock new therapeutic possibilities.

 

By putting patients at the heart of discovery, we aim to transform the landscape of liver disease research and improve lives worldwide.