Our Mission

The mission of the PBC Research Foundation (PRF) is to accelerate the path to clinical treatments for rare liver diseases by harnessing the power of patient-centered and patient-owned data. Our primary focus is on Primary Biliary Cholangitis (PBC), where we work directly with patients to collect and analyze real-world, regulatory-compliant data that reflects the true impact of the disease. By advocating for patient ownership of data and fostering collaboration with researchers, clinicians, regulatory boards, and industry partners, we bridge the gap between data collection and clinical breakthroughs. Beginning in our second year, we will expand our efforts to include other liver disorders, identifying common genetic factors and biomarkers that can unlock new therapeutic possibilities. At PRF, we believe that by putting patients at the heart of research, we can transform the future of liver disease treatment and improve lives worldwide.